I struggle every day to do things it is different to my CDC brothers and sisters. I don’t give false hopes to anyone because every CDC child/adult is different in their own way. I am not a normal 28 year old because it takes me longer to learn things but I try my every best and if I can’t do it the normal way I do it my way. I struggle every day with my concentration, sensory issues and my hip dysplasia, everyone who knows me, knows that I love to walk but it takes a lot out of me especially at the moment walking to my Mum’s every single day to feed Beanie (Mum’s cat). I don’t have a full time job because if I did I would become very sick and stressed out but I volunteer, what I love about volunteering is I am giving back to the community through commitment whether it be working at Trade Aid or the YMCA I have learnt new skills or found the confidence in myself to better myself at something to make a difference in someone else’s life. Then there is the work that I do for CDC and I love each new family that comes into the group and tells their story whether there are starting out on their journey with a recently disgonsed baby or joined later a few years later after their child was disgonsed. At the conference in Texas I want to learn as much information as possible so I can better myself in helping the new members of the CDC community and network with people that I have meet on facebook but not in real life. I know what it is like to be alone and I know that I am scross the other side of the world a kiwi girl with a big heart and I want to let the new families that you are not alone anymore.