I struggle every day to do things it is different to my CDC
brothers and sisters. I don’t give false hopes to anyone because every CDC
child/adult is different in their own way.
I am not a normal 28 year old because it takes me longer to learn things
but I try my every best and if I can’t do it the normal way I do it my
way. I struggle every day with my concentration, sensory issues and
my hip dysplasia,
everyone who knows me, knows that I love to walk but it takes a lot out of me especially
at the moment walking to my Mum’s every single day to feed Beanie (Mum’s
cat). I don’t have a full time job
because if I did I would become very sick and stressed out but I volunteer,
what I love about volunteering is I am giving back to the community through commitment
whether it be working at Trade Aid or the YMCA I have learnt new skills or
found the confidence in myself to better myself at something to make a difference
in someone else’s life. Then there is the
work that I do for CDC and I love each new
family that comes into the group and tells their story whether there are
starting out on their journey with a recently disgonsed baby or joined later a
few years later after their child was disgonsed. At the conference in Texas I want to learn as
much information as possible so I can better myself in helping the new members
of the CDC community and network with people that I have meet on facebook but
not in real life. I know what it is like
to be alone and I know that I am scross the other side of the world a kiwi girl
with a big heart and I want to let the new families that you are not alone anymore.
Sure you dont give false hope, you just speak about you, about what you know about this syndrom.
ReplyDeleteSome cdc are more severely affected than others.
But you are not speaking about all of them but of you and i repeat, this is not giving false hope.
Keep going