I know I haven’t written my blog for almost a month but I
couldn’t write because of Crede thank you for all the messages on facebook it
means the world to me and his ashes are in a box from Trade Aid at home on the mantel
piece surrounded by my four big of my elephants and I talk to him to every
single day. If I can change one parent’s point of view of CDC, I have done my
job. A lot of my CDC brothers and
sisters are non verbal or have limited speech so they can’t say how CDC affects
them or how it impacts their life. I
have been introducing myself to families over four years now and I have made
friends in a lot of different countries and I love what I do because I am of
the only few who can explain what CDC is and how it affects me as a person
there is a song called “You’re the Voice” by John Farnham which really relates
to me because I am one of the voices for CDC.
I reach out to a lot of new families once a week through facebook
because they think they are alone in the world with a child of CDC. New parents that I meet ask me all sorts of
questions and I try to answer the best that I can and I have showed my video of
to my speech if you haven’t seen it and would love to see it just contact me
through facebook and I will give you my video to watch. You won’t see it on my profile page because
there are some things in my video that I didn’t want some people to say but I
know where I have put it on facebook. I
am one of the admins for a group and a page because the other admins don’t
always see if a person has posted and I love meeting new people and telling
them what I CAN do not what I CAN’T do but I do some things that I can’t do in
there too. Because no one is perfect in
this world. Also I read a lot a passion
that started when I was five and is going to carry on for the rest of my life
as well.