I celebrate my life every single day because I know that my
life would turn out very differently if I had the full syndrome. This week I have been on my own because my
parents are off in two different countries my Mum is in America doing route 66
with couple of their friends and their new car that they have just brought and
being posting photos every single day on facebook and they are in Texas at the
moment but tomorrow they will be in Santa Fe staying with my brother and sister
in law for couple of days and we are going to try and skype each other while
they are there. My Dad is in Europe in
Rome currently enjoying celebrating my younger sister’s birthday today and
later they are going to board a yacht in Croatia for a week and we tried to
skype on Sunday for Father’s Day but it kept on freezing but I did get to see
my sister and my Dad twice for 5 seconds.
I have being going up every single day to feed Beanie and my YMCA boss
that I work with that I have being working with for almost four years it was
her last day today because she is moving to Australia to live and I am going to
miss her because when I started working I would only stay with her down the
stairs and do activities downstairs with her and the children but when we moved
to my old primany school (long story) I had to step up and have more responsailty
where we have the cirect set up and I now can say that I confidently I can show
the cirect to the children without any help and supervise the children in the
room. I have come a long way since I
first started working at the YMCA. Also
this week I found couple of families on one of the pages called Stop
discrimination against special needs whose children have CDC and didn’t know
anything about Cri Du Chat / 5p- Society on facebook so I told each of the Mums
if they wanted to join let me know so I could introduce them to each of
you. Also this week on facebook I
updated my Status to this For those who don't know I am going to the Cri Du
Chat conference next year in America it is going to be held in San Antonio and
I can't wait because I reach out to so many families and I love what I do
because I give hope to so many families.
You give false hopes! You shouldn't be talking down about others with the "full" syndrome and thinking less of them the way you do. If you think that you are not talking down about them then you need to learn how to write.
ReplyDeletePlease go read her next blog. We at CDC are so proud of her!
DeleteI think anonymous doesn't have any 5P- kids or they would understand the degrees of differences in all our kids. Rachel I like your Blog :)
ReplyDeleteShame on you anonymus! We all love your blog Rachel!
ReplyDeleteMr or mrs anonymous....I feel you should edit your brain before you open your mouth or put fingers to the keyboard. Rachel don't let anyone stop your blog or talk down to you Tiffany and I both love it. Mr or mrs anonymous I struggle to see a drama with a bit of HOPE
ReplyDeleteWhen on somedays there seems to be very little. I have never once read or seen were Rachel has ever spoken down about anyone else with any varying degree of CDC, that's the beauty of these kids they just don't judge (that's common knowledge) keep up the good work Rachel.
And by the way mr or mrs anonymous
My name is Kelsey preece
And I have a daughter with CDC