I am a strong, confidant, beautiful woman who has reached
out to a lot of wonderful, gorgeous and some amazing families. When I started
reaching out to families I didn’t realise that there would be s many different
families who have children and adults with CDC.
I remember having my first conversion with a Mum who lived in America on
Facebook and she was quite amazed the things that I could do so the word
quickly began to spread about me and what hope I could give to other
families. By that stage I was living in
a house with three other girls and starting to do things on my own without my
Mum’s help. I started then writing my
intro about myself to new families that I would send friend requests too. These families didn’t judge me on the way
that I lived my life. They accepted me for
the way that I am and what I have. I am
so honoured to speak at the Gold Coast conference next year and I am going to
make everyone proud of me because this is my chance to tell my story about
living with CDC. Like Hannah said I have
a very unique insight to what it is like living with CDC. This is my perfected intro about me to new
families for the moment until something changes and I will atomically update it.
Hi my name is Rachel and I have Cri Du Chat but I am a mosaic which means
some of my cells are affected but not all of them about 30%. I live in New
Zealand and I live independently away from my parents in a house of my own and I have a boyfriend of four years called Bryan and I am 27.
I am still amazed at all you do. You give a lot of hope and insight as to what the rest of us can work for. God go with you and I do hope Bryan will be ok.
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