Thursday, 20 September 2012


When did I become extraordinary?  Was it the time I started reaching out to parents whose children have the same syndrome that I do?  I am just a girl from a little country on the other side of the world.  Sure I can do a lot of things that other people with my syndrome can’t do like move out of home and live independently on my own or have a wonderful boyfriend that I love more than anything or anyone (Mum comes a close second.)  Maybe I am extraordinary because I believe in myself and what I want to do with my life or the fact that nothing gets me down because there is a positive way of looking at things when things don’t turn out right when you have made plans.  I am a Kiwi girl trying to pave the way for others with Cri Du Chat maybe that is why I am extraordinary. Maybe its just me but I still want to be that girl with the rare syndrome playing on the trampoline while skipping with a skipping rope in her hand and having fun and laughing and not having a care in the world. To me I am just me a girl walking with a slight limp.  When I was growing up I didn’t realise that I would be extraordinary but I am in my own way.

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