I am a superhero, I don’t wear a cape or fly or fight crime
or drive a bat mobile like all of the superheroes that you read in comic books
or watch in movies or watch on tv. But
in real life I am a superhero to a lot of CDC families that I reach out to on
facebook. A lot of these families need
some guidance about where to go because the info they get is out of date and a
lot of doctors don’t know a whole lot about CDC. I put on superhero cape which is full of love
and understanding and a lot of empathy to their situation and to let them know
that I am here for them, to help them understand CDC a lot better and guide
them to the answers that they have been searching for so they don’t feel so
alone. I am only one of the very few who
know what it is like living with CDC every single day. Over the last few years that I have been
reaching out to families through facebook I felt like I am doing something
worthwhile to my life and it has been an amazing journey to find families that
believe in me and I have made so many lifelong friends and three amazing best
friends because they believed in me and I can’t wait for next year to meet you
all in person and so I can give you all a big hug and say thank you. By the way Batman is my favourite superhero
because he drives the bat mobile.
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