It isn’t my fault about how I am a mosaic sometimes I wish I
had the full syndrome so I could see what it was like for a day. When I was growing up I got bullied, teased,
pick up on and was called the “R” word and so many other nasty words that
little children were saying. I didn’t
fit in at all at school I was the child in the library at most lunchtimes
because I love reading and wanted to increase my knowledge. I was a school librarian from the age
11-18. I struggle every single day with
sensory and wanting me to touch everything in sight and run my fingertips over
walls, shop windows and things like that.
It was my best friend’s birthday the other weekend and I wanted to go out
and celebrate with her because it was her birthday but she was going to a pub
where it would be noisy and overcrowded with heaps of people and I didn’t go
because I would have gotten there and wanted to come back home within half an
hour. Maybe you were having a bad day reading
my blog and needed to vent towards me, we have all done that vented at someone
to let it all out of our system. When I
was reading your comments the first time I wanted to cry because your comments
were nasty and mean and I didn’t want to write anymore because of what you
said. But then the CDC community on
facebook were like please don’t stop writing we like reading what you write. I am an adult and there are favourite toys
that I like to play with even if they are different from everyone else’s we can’t
always be the same. I struggled to fit in all of my life and about
four years ago I was on Facebook one day and I typed in Cri Du Chat and a group
came up so I joined it and I told the group that I was a mosaic and that I
lived in New Zealand. That group changed
my life forever because I was accepted for being me and no one judged me for
being me. I am respected by a lot of CDC
families because I can help them understand CDC better and answer any questions
that they might have in my own way. I
don’t have all the answers to all of the questions but I certainly try to
answer them. I don’t think less of my
CDC brothers and sisters because they have the full syndrome or can’t do certain
things I love them all equally and I am
one of the only ones out there can explain what it is like living with
CDC. I want you to be your friend if you
will allow me too I know that you might not be ready too but I am here and so
is the CDC community to help you whenever you need it.